The Tong Wei Family
Niemann-Pick Type C
Tong Weibing lacked motor coordination and had difficulty walking, paying attention, and moving his eyes.
Tong Weibing's family traveled to Europe to buy medication for him, but were unable to get it. He remained, for the most part, untreated.
Vtesse Phase II/III Trial
Tong Wei and Zhang Ye heard about the Vtesse cyclodextrin trial from fellow China NPC community member, Jiao Yunlong.