Web Content Display

The Marinho Family

Web Content Display

Image

Paulino

Guilherme's dad, Paulino, has been fighting NPC with his son since 2008.

Web Content Display

Gabriela

Gabriela was 11 years old when her younger brother was officially diagnosed with Niemann-Pick Type C. She fights alongside Guilherme as he struggles his condition.

Guilherme

When Guilherme was 8 years old, he was officially diagnosed with Niemann-Pick Type C. Three years later, In February 2011, Guilherme received his first infusion of cyclodextrin.

Web Content Display

Niemann-Pick Type C

Web Content Display

Symptoms

"His first symptoms were school-related. He began displaying trouble concentrating. He couldn't focus properly anymore. His writing skills got a lot worse. We had to go through a lot to finally understand what was happening."

Web Content Display

Cyclodextrin

Web Content Display

Using Cyclodextrin

"The treatment is a little bit painful because we're still going through the intravenous stage. Things will improve as soon as we move to the intrathecal stage."

Web Content Display

Results

"His ability to swallow improved greatly, he gained more control over his salivation, his involuntary movements also had noticeable improvements...I have nothing but good things to say about cyclodextrin."

Web Content Display

Pursuing Cyclodextrin

"Your doctor needs to be a real companion, committed to the cause, willing to take risks. We, as parents, as family, also have to take the risk. It's our son's life at stake. Without the risks, there would have been no improvement."

Web Content Display

Recommending Cyclodextrin

"Get your children treated with cyclodextrin...it will fight every symptom this disease has plagued our children with."