The Jiao Yunlong Family
Niemann-Pick Type C
Jiao Tong was once physically active, bringing a basketball to school daily. However, he began to lose his interest in sports and to have difficulty balancing, walking and swallowing.
When Jiao Tong was 12 years old he was hospitalized for a fever, but the doctors couldn't find what was wrong. After many tests, including genetic testing, he was diagnosed with Niemann Pick type C.
Learning About Cyclodextrin
After much searching for a treatment for Jiao Tong's NPC disease, his parents learned of VTS-270 (cyclodextrin) and the Vtesse trial in the US.