The Hempel Family
Addi and Cassi's father, Hugh, is an Internet pioneer who sold one of the first banner ads on the World Wide Web. Hugh has spearheaded the search for an NPC treatment since his girls' diagnosis in 2007.
Addi and Cassi
Niemann-Pick Type C
This was the first treatment method for Addi and Cassi - a continuous infusion of cyclodextrin over 4 days.
In October 2012, Addi and Cassi began to receive cyclodextrin directly into the spinal fluid.
Knowing that early-onset NPC meant that Addi and Cassi were only expected to live to the age of 10, Hugh and Chris made it their mission to find a way to help their daughters.